Time

Wayne and Kim and I are on a quest for information. If something should happen to me tomorrow and I needed my oxygen, Kim and Wayne don’t know how to use my oxygen tank. So I am writing down all the info I can for “in case of” and we are searching for other available help for Brian and I. Kim and Wayne go back to school the middle of next month. I may need some help for myself and for Brian soon, especially when I have doctor appointments. So we are finding out what community services are available to us. It has been almost a year since I was diagnosed with Pulmonary arterial hypertension. My doctor and I knew I had it before my heart cath but I put off the cath as long as I could. My DLCO on my pulmonary function tests a week a go is down, consistant with the prognosis for my pulmonary hypertension. I have used up almost a year of my time already. Time flies when you are having fun! So we are trying to get things in place for the care and help we will need in our future.
I have no problem talking about myself and my prognosis and what I will need. But it is so heart breaking to talk about Brian, my love and my soul mate. I had figured I would take care of him to the end of his disease process but that probably will not be a reality for me. I promised him I would take care of him. He is able to deal with Alzheimer’s because he knows I will take care of him. I pray for a cure or a treatment that stops the Alzheimer’s process for Brian. And I pray for time so I can take care of him.